Register Today – Progression in MS Webinar – 2021 Webinar Series

Join us to learn more about progression in MS and the advances being made in research.

The New Zealand Multiple Sclerosis Research Trust is pleased to announce the next webinar in the 2021 series with a focus on MS and Progression.Date: Wednesday 22nd SeptemberTime: 6.30-8pmLocation: ZoomAbout the Webinar

Multiple Sclerosis is often associated with gradual, progressive worsening of disability. Unlike the episodic, relapsing component of MS, the progression is relative resistant to the presently available disease modifying therapies. While disease and disability progression naturally occurs in all forms of MS, between 12-16% of New Zealanders have a progressive form of MS at diagnosis. However, promising new evidence has emerged from randomised trials and from observational studies.

Our first speaker, Professor Tomas Kalincik, is a Neurologist and researcher at the Royal Melbourne Hospital MS Centre and working with the CORe research group and MS Base. Professor Kalincik will provide an overview of recent developments in measurement and prevention of MS progression.

Our second speaker, Dr Julia Morahan, is Head of Research at MS Australia. MS Australia is a managing member of the International Progressive MS Alliance and at the forefront of stimulating and investing in research. She will discuss the work of the International Progressive MS Alliance, its current focus and the research it is supporting.

Zoom details will be sent the week before the event. You will be able to ask questions to our speakers at the end of each session.

So, what are you waiting for, register today, then grab a coffee & head to your couch and tune in. If you miss the session, a recording will be available to watch later.

All registrants will be sent a copy of the recording after the event so you only need to select 1 ticket type.

REGISTER HERE

Please support our work

Our webinars are free of charge, however a donation to assist in covering our costs and funding MS Research in NZ would be greatly appreciated.

Please support the work of the Trust by either:

  • making a donation with your ticket at registration (simply select ‘Ticket with a donation’) and choosing the amount you wish to donate;
  • by donating directly to our Account at the BNZ: 02-0214-0186752-00. Please show your name as the reference and email us at info@msresearch.nz so we can send you our receipt for tax purposes;
  • or you can donate by Givealittle at https://givealittle.co.nz/org/nzmsrt/

About Professor Tomas Kalincik and the CORe Research Group

Professor Tomas Kalincik is Dame Kate Campbell Professorial Fellow, the head of the Clinical Outcomes Research (CORe) Unit at the University of Melbourne and of the MS Centre at the Royal Melbourne Hospital.

Together with his research group, CORe, Tomas specialises in analytics of observational data in neurology. He is the chair of the Scientific Leadership Group of the global MSBase collaboration. He has led a number of international collaborative research initiatives – including studies of comparative effectiveness of MS therapies, management of treatment failure and individual treatment response. His main research interests span treatment outcomes in MS and other neuroimmunological diseases, individualised therapy, prognostics (including emerging biomarkers), causal inference, epidemiology and utility of volumetric MRI. He is the convenor of the international CORe Advanced Statistics Course, endorsed by the European Committee for Treatment and Research in MS.

About the International Progressive MS Alliance

The International Progressive MS Alliance is a global collaboration of MS organisations, researchers, health professionals, the pharmaceutical industry, companies, trusts, foundations, donors and people affected by MS – working together to address the unmet needs of people with Progressive MS. The Alliance is focused on the development of effective treatments for people with progressive forms of MS to improve quality of life worldwide.

And don’t miss out on our other events

We will be holding 1 more webinar this year with a focus on MS research in NZ. To stay up to date with our work and upcoming events join our e-mailing list here.

The MS Research Trust: Why we are here

The goal of the MS Research Trust is to stimulate, co-ordinate and support New Zealand-based research into the cause, prevention, treatment, alleviation and cure of Multiple Sclerosis, and to disseminate research findings. We were established in 2015 with donations from MSNZ and the MS Auckland Trust, and we continue to seek donations and bequests to support the research being undertaken.

The Trust:

• Collaborates with partners to fund research that helps people with MS;

• Informs people about research findings;

• Uses fact-based research findings to improve the lives of people with MS.

Find out more here: www.msresearch.nz

Or contact us at info@msresearch.nz

Jan Campbell

Chairperson

Born in Ōtautahi Jan trained as a nurse in Christchurch, as a midwife in Winchester, UK and has a degree in philosophy with particular interest in healthcare and business ethics.

After working in the public health system in the UK and NZ, Jan joined Roche Pharmaceuticals based in Auckland in 1999. As a respected senior leader and Medical Director, she established a medical division over the ensuing 20 years responsible for significant investment in clinical trials in NZ, developing a top-class global medicine information service, compassionate medicine supply for kiwis in need, pharmacovigilance oversight and a team working closely with patients, specialists, MEDSAFE and PHARMAC to support the safe and appropriate use of Roche medicines.

As a retiree Jan has volunteered for Mercy Hospice in Auckland and the WBoP Museum in Katikati. Now living in Ōtepoti, Jan sits on both the MS Research Trust and MSNZ executive committees with a keen interest to ensure people with MS get a fair go in NZ.

Dr Elza Cloete

Trustee

Elza is a Neonatal Paediatrician at Christchurch Women’s Hospital. Originally from South Africa, she moved to New Zealand in 2006 and completed her specialist training in Auckland.

Subsequent to that she embarked on doctoral studies at the University of Auckland’s Liggins Institute and obtained a PhD investigating congenital heart disease in new-born babies.

Elza received the Vice-Chancellor’s award for best doctoral thesis for her research and is the author of several research publications. She moved to Christchurch in 2020 for a work opportunity in clinical practice.

Elza was diagnosed with MS in 2012 and brings a consumer perspective and research experience to the Trust.

Kate Russell - ONZM FFINZ

Trustee

Kate has a thirty year history of working in the community as an enabler, fundraiser, strategic advisor and change maker.

Former CEO of Cystic Fibrosis NZ and the Canterbury Medical Research Foundation, Kate has held many Board positions as well as membership on several government advisory boards such as Pharmac and The Paediatric Society.

Fellow of the Fundraising Institute of NZ, Kate has raised more than 30 million dollars for charity over her career and became an officer of the NZ Order of Merit in 2018 for services to health and governance.

Currently, Partnerships Manager with the ChCh City Council, Kate is a published author and mentors a number of young professionals through Business Mentors NZ and in her spare time, is a marriage celebrant

Kelly Scott

Trustee

Missing Content!!!

Dr Ernie Willoughby

Trustee

Dr Willoughby has been a consultant neurologist at Auckland City Hospital (1979 to 2021 – now retired, emeritus) and clinical associate professor at Auckland University School of Medicine.

He directed the MS clinic at Auckland Hospital, has had a long association with the Auckland and NZ MS Societies, and is a member of the International Medical and Scientific Board of the MS International Federation.

Dr Brian Linehan

Independent Trustee

Dr Brian Linehan is a retired pathologist who was previously Managing Director of Medlab Hamilton.

He is currently Chairman of the Tranmere group of investment companies and a Director of a number of other private companies. In 2014, he retired after 12 years on the Council of the University of Waikato where he was Pro-Chancellor.

He is a past Chairman of the New Zealand Medical Association, past Chairman of NZMA Ethics Committee, past President and Chairman of CMAAO (Combined Medical Associations of Asia and Oceania) and past Chairman of IANZ (International Accreditation NZ).

Brian was diagnosed with MS in 2007 but is still active and mobile.

Peter Wood - JP, BCom, AGNZ, ACIS, FNZTA

Treasurer

Peter gained his commerce degree at Victoria University of Wellington and has been practising as a Chartered Accountant initially in Wellington and then in Tauranga.

Peter was a respected and trusted advisor to many businesspeople.
He is now resident in Auckland and consultants to a limited number business clients.

He has also served his community through involvement with Jaycees, Lions and Rotary clubs and a number of charitable trusts.

Peter is currently the Treasurer of Multiple Sclerosis Auckland and a trustee of the Multiple Sclerosis Auckland Trust.
Peter is a Justice of the Peace and a member Governance New Zealand and is a Fellow of the NZ Trustees’ Association.

Malcolm Rickerby

Trustee

Malcolm is on the National Executive Committee for the Multiple Sclerosis Society of New Zealand. Malcolm is a Past-President both the National Society and the Multiple Sclerosis & Parkinson’s Society of Canterbury.

He is respected for his governance and support for staff in the drive to deliver the best medical outcomes and support for people with Multiple Sclerosis and Parkinson’s as well as keeping them in their communities.

He is a Rotarian and in the forefront of delivering a programme to primary schools to reduce obesity and diabetics in children, called Healthy Heroes, in the 9970 District.

Malcolm has been Chairperson of a High School Board of Governors, secretary, treasurer of a local primary school committee, coached women’s cricket and was a member of Canterbury Women’s Cricket Council. He has also served as a vestryman and vicars warden in the Anglican Christchurch Diocese.

Neil Woodhams

Trustee

Neil is an independent health management consultant who has had an extensive career in health management as a senior manager or consultant to government, DHBs, primary care and community providers.

Neil is President of MS New Zealand and a trustee of the MS Auckland Region Trust. Neil was also President of MS Auckland until he stepped down from this role mid-2020 to concentrate on his national roles.

Neil’s wife was diagnosed with MS in 1994. One of his four sons was also diagnosed in 2010.

Neil strongly believes in the objectives of the NZ Multiple Sclerosis Research Trust and has advocated for the establishment of the Trust for over 10 years.

Sir William Gallagher

Trustee

Sir William is renowned as a motivational, pragmatic and hands-on businessman in and outside of New Zealand and has a reputation both as a dynamic leader and one of NZ’s most astute businessmen.

Still very involved in the daily operation, he maintains regular contact with customers in the 130 countries in which Gallagher products are sold spending up to 150 days a year on the road representing the company and its philosophies and emphasising the ethics and integrity of his professional and personal dealings.

His achievements have been officially recognised by a string of awards, the latest to mark his commitment to enterprise and leadership skills being his Knighthood in the 2010 New Year’s Honours List. He was also the 1996 winner of the prestigious Excellence in Communication Leadership award, the first time in its history that it had been awarded outside of North America. He also received an MBE in 1987 followed by a Companion of the New Zealand Order of Merit (CNZM) in 1998.

Sir William Gallagher - KNZM, MBE. HonD

Patron

Sir William is renowned as a motivational, pragmatic and hands-on businessman in and outside of New Zealand and has a reputation both as a dynamic leader and one of NZ’s most astute businessmen.

Still very involved in the daily operation, he maintains regular contact with customers in the 130 countries in which Gallagher products are sold spending up to 150 days a year on the road representing the company and its philosophies and emphasising the ethics and integrity of his professional and personal dealings.

His achievements have been officially recognised by a string of awards, the latest to mark his commitment to enterprise and leadership skills being his Knighthood in the 2010 New Year’s Honours List. He was also the 1996 winner of the prestigious Excellence in Communication Leadership award, the first time in its history that it had been awarded outside of North America. He also received an MBE in 1987 followed by a Companion of the New Zealand Order of Merit (CNZM) in 1998.