MS Research Terms & Conditions

1. Introduction

Welcome to New Zealand Multiple Sclerosis Research Trust (NZMSRT) website. These terms and conditions explain the terms that apply to your use of the following New Zealand Multiple Sclerosis Research Trust.
Websites (our Websites):

  • msreserch.org.nz
  • any other website operated by New Zealand Multiple Sclerosis Research Trust from time to time.

If you would like to contact us in relation to these terms and conditions or our Websites, please email us at the details set out in the Contact Us section below.

2. Application and updates

2.1 Access to and use of our websites is subject to:

a) the terms and conditions set out and referred to below,
b) any specific terms that are notified to you on our websites; and
c) our Privacy Policy (which is also available on our websites) (Privacy Policy),
each as amended from time to time (together with the Website Terms).

2.2 Please read the Website Terms carefully each time you visit our websites. By accessing and using our websites you are deemed to confirm that you have read, understood and agreed to be bound by these Website Terms. If you do not agree to any part of the Website Terms, you must not access, or must immediately stop accessing our websites. If in our reasonable opinion, you have breached any of our Website Terms, we may immediately suspend or block your access to any of our websites.

2.3 We may update these Website Terms (or any part of them) at any time by posting an updated version on our websites. The updated version of these Website Terms will take effect immediately upon such notice. We may also take additional steps to bring the changes to your attention, including by notifying you directly. You are responsible for reviewing these Website Terms regularly to ensure that you are aware of any updates.

2.4 We may change the format, content and/or functionality of any part of our websites at any time.

3. Use of our Websites

3.1 You must:

a) review and comply with any eligibility criteria (such as age restrictions) notified to you when you use any of our websites; and
b) only use our websites for your own personal, non-commercial use.

3.2 You must not:

a) use a website to in any way infringe the privacy or other rights of other users of our website or any third party.
b) use a website in any way that breaches any applicable laws or that may cause distress, harm, or inconvenience to any other person.
c) data mine, screen or web scrape or crawl any website, its pages or it’s content or use any process or processes that send automated queries to this Website unless you have obtained our prior written consent.
d) misuse or do anything that disrupts all or any part of our websites, including knowingly introducing software viruses, trojans, worms or other material that may be harmful; or
e) state, suggest or in any way give the impression that you have any commercial relationship with us, or that you are our agent or that we have endorsed any submission you may make to our websites.

3.3 All information contained on our websites is provided for general information purposes only. It is not intended to be relied on, nor a substitute for your own judgement or for advice (including medical advice). We do not guarantee that any information provided on our websites is accurate, complete, up to date or suitable for your intended use.

4. Security

4.1 Security of your information and your use of our websites is very important to us. We will take reasonable technical and organisational precautions to protect our websites and the information that we hold. However, due to the inherent nature of the internet, we are not able to guarantee that our websites or any information that we hold or that you transmit to us will be secure or free from bugs or viruses.

4.2 You are responsible for taking your own measures to reduce the risk of viruses or other forms of interference damaging your computer system.

5. Exclusion of our liability

5.1 To the extent permitted by law:

a) our websites are provided on an “as is” and “as available” basis and any warranties, representations, conditions, undertakings, and terms, whether expressed or implied, are expressly excluded; and
b) in no event will we be liable under contract, tort (including negligence) or otherwise in connection with: (i) your access to, use of, inability to use or reliance on our websites; or (ii) any information contained in, accessed, or provided to us through our websites.

5.2 You acknowledge that access to our websites is provided at no charge and accordingly the exclusions of liability set out in this clause are fair and reasonable.

5.3 Our Websites may provide links to other websites for your convenience and information. These websites are outside our control and the provision of a link to a third-party website does not imply our agreement to or endorsement of any of the information contained on the third-party website or otherwise imply any association with the third party. Third-party websites may have different terms of use and privacy policies, which you should review before using the third-party website.

5.4 If you link our websites to your website, you must remove the link at our request.

6. Intellectual property rights

6.1 We own or have obtained a valid licence to use all copyright, trademarks and other intellectual property rights used on our websites and all such intellectual property rights will remain solely with us and/or our licensors (as the case may be).

6.2 Unless otherwise indicated, the material available on our websites is protected by copyright. You can reproduce this material to your own computer for your personal use free of charge without further permission, as long as you:

a) reproduce the material accurately.
b) do not use the material in a derogatory manner or a misleading context; and
c) acknowledge the source and copyright status of the material.
You may not post or redistribute any portion of our website unless you have a license from us to do so.

7. Important Notice: New Zealand residents

7.1 Our Websites and Services are intended for New Zealand residents only. If you are located in another country, you may be subject to other laws, including data protection laws. For that reason, if you are not located in New Zealand, you are not permitted to use, and must immediately cease using, our Website and Services.

8. General

8.1 These Website Terms are governed by and construed in accordance with the laws of New Zealand, and you submit to the exclusive jurisdiction of the courts of New Zealand.

8.2 These Website Terms constitute the entire agreement between you and us relating to our websites.

8.3 If any provision of these Website Terms is found to be unenforceable or invalid, that provision will be limited or removed to the minimum extent necessary so that these Website Terms will otherwise remain in full force and effect. Our failure to exercise any right will not be deemed a waiver of that right or any other rights that we may have.

8.4 In these Terms

(a) headings are for convenience only and do not affect interpretation;
(b) a reference to a statute includes all regulations under and amendments to that statute and any statute passed in substitution for that statute or incorporating any of its provisions to the extent that they are incorporated;
(c) a word importing the singular includes the plural and vice versa;
(d) a reference to a party to these Terms includes that party’s successors and permitted assigns and substitutes;
(e) “including” (and similar expressions) will be construed as “including, without limitation”; and
(f) the singular includes the plural and vice versa.

9. Contact us

9.1 If you have any questions about these Website Terms or our Website, please contact us at:

New Zealand Multiple Sclerosis Research Trust
PO Box 1192,
Central Christchurch, 8140
New Zealand

Email: info@msresearch.org.nz
Phone: +64 (0) 39837145

These Website Terms were last updated by NZMSRT in May 2022.

Andrew Cushen

Trustee

Andrew is an independent corporate affairs and strategy consultant, working and living in Auckland. He has previously held senior positions in a number of corporate and not-for-profit entities in New Zealand.

Across his career, Andrew has worked as a funder of research projects (albeit in different areas than medicine and health), served in a number of not-for-profit governance roles, and been successful in developing and implementing collaborative funding models to extend investment in research and community programmes.

Andrew’s interest in Multiple Sclerosis stems from his father’s diagnosis with progressive MS in the early 2000s, and he is keenly interested in research, treatment and management approaches that may lessen the impact of MS on those diagnosed and their families.

Julia Howell

Trustee

Julia is a qualified nurse and midwife, with a varied career including specialising in eating disorders, primary healthcare, and management.    

Julia, in partnership with a GP, set up an outpatient clinical trials unit (Southern Clinical Trials). Under her leadership this grew into a network of 6 sites across NZ. This network merged with another one in 2021 to form PCRN, NZ’s largest clinical trials network. Julia is currently working as joint COO for PCRN.

Julia’s daughter was diagnosed with MS aged 14 and she has been intimately involved with her management over the years.

 

Jan Campbell

Trustee

Born in Ōtautahi Jan trained as a nurse in Christchurch, as a midwife in Winchester, UK and has a degree in philosophy with particular interest in healthcare and business ethics.

After working in the public health system in the UK and NZ, Jan joined Roche Pharmaceuticals based in Auckland in 1999. As a respected senior leader and Medical Director, she established a medical division over the ensuing 20 years responsible for significant investment in clinical trials in NZ, developing a top-class global medicine information service, compassionate medicine supply for kiwis in need, pharmacovigilance oversight and a team working closely with patients, specialists, MEDSAFE and PHARMAC to support the safe and appropriate use of Roche medicines.

As a retiree Jan has volunteered for Mercy Hospice in Auckland and the WBoP Museum in Katikati. Now living in Ōtepoti, Jan sits on both the MS Research Trust and MSNZ executive committees with a keen interest to ensure people with MS get a fair go in NZ.

Dr Elza Cloete

Trustee

Elza is a Neonatal Paediatrician at Christchurch Women’s Hospital. Originally from South Africa, she moved to New Zealand in 2006 and completed her specialist training in Auckland.

Subsequent to that she embarked on doctoral studies at the University of Auckland’s Liggins Institute and obtained a PhD investigating congenital heart disease in new-born babies.

Elza received the Vice-Chancellor’s award for best doctoral thesis for her research and is the author of several research publications. She moved to Christchurch in 2020 for a work opportunity in clinical practice.

Elza was diagnosed with MS in 2012 and brings a consumer perspective and research experience to the Trust.

Dr Ernie Willoughby

Trustee

Dr Willoughby has been a consultant neurologist at Auckland City Hospital (1979 to 2021 – now retired, emeritus) and clinical associate professor at Auckland University School of Medicine.

He directed the MS clinic at Auckland Hospital, has had a long association with the Auckland and NZ MS Societies, and is a member of the International Medical and Scientific Board of the MS International Federation.

Dr Brian Linehan

Independent Trustee

Dr Brian Linehan is a retired pathologist who was previously Managing Director of Medlab Hamilton.

He is currently Chairman of the Tranmere group of investment companies and a Director of a number of other private companies. In 2014, he retired after 12 years on the Council of the University of Waikato where he was Pro-Chancellor.

He is a past Chairman of the New Zealand Medical Association, past Chairman of NZMA Ethics Committee, past President and Chairman of CMAAO (Combined Medical Associations of Asia and Oceania) and past Chairman of IANZ (International Accreditation NZ).

Brian was diagnosed with MS in 2007 but is still active and mobile.

Peter Wood - JP, BCom, AGNZ, ACIS, FNZTA

Treasurer

Peter gained his commerce degree at Victoria University of Wellington and has been practising as a Chartered Accountant initially in Wellington and then in Tauranga.

Peter was a respected and trusted advisor to many businesspeople.
He is now resident in Auckland and consultants to a limited number business clients.

He has also served his community through involvement with Jaycees, Lions and Rotary clubs and a number of charitable trusts.

Peter is currently the Treasurer of Multiple Sclerosis Auckland and a trustee of the Multiple Sclerosis Auckland Trust. Peter is a Justice of the Peace and a member Governance New Zealand and is a Fellow of the NZ Trustees’ Association.

Neil Woodhams

Trustee

Neil is an independent health management consultant who has had an extensive career in health management as a senior manager or consultant to government, DHBs, primary care and community providers. 

Neil is President of MS New Zealand and a trustee of the MS Auckland Region Trust. Neil was also President of MS Auckland until he stepped down from this role mid-2020 to concentrate on his national roles.

Neil’s wife was diagnosed with MS in 1994. One of his four sons was also diagnosed in 2010.

Neil strongly believes in the objectives of the NZ Multiple Sclerosis Research Trust and has advocated for the establishment of the Trust for over 10 years.

Sir William Gallagher

Trustee

Sir William is renowned as a motivational, pragmatic and hands-on businessman in and outside of New Zealand and has a reputation both as a dynamic leader and one of NZ’s most astute businessmen.

Still very involved in the daily operation, he maintains regular contact with customers in the 130 countries in which Gallagher products are sold spending up to 150 days a year on the road representing the company and its philosophies and emphasising the ethics and integrity of his professional and personal dealings.

His achievements have been officially recognised by a string of awards, the latest to mark his commitment to enterprise and leadership skills being his Knighthood in the 2010 New Year’s Honours List. He was also the 1996 winner of the prestigious Excellence in Communication Leadership award, the first time in its history that it had been awarded outside of North America. He also received an MBE in 1987 followed by a Companion of the New Zealand Order of Merit (CNZM) in 1998.

Sir William Gallagher - KNZM, MBE. HonD

Patron

Sir William is renowned as a motivational, pragmatic and hands-on businessman in and outside of New Zealand and has a reputation both as a dynamic leader and one of NZ’s most astute businessmen.

Still very involved in the daily operation, he maintains regular contact with customers in the 130 countries in which Gallagher products are sold spending up to 150 days a year on the road representing the company and its philosophies and emphasising the ethics and integrity of his professional and personal dealings.

His achievements have been officially recognised by a string of awards, the latest to mark his commitment to enterprise and leadership skills being his Knighthood in the 2010 New Year’s Honours List. He was also the 1996 winner of the prestigious Excellence in Communication Leadership award, the first time in its history that it had been awarded outside of North America. He also received an MBE in 1987 followed by a Companion of the New Zealand Order of Merit (CNZM) in 1998.